{"id":11657,"global_id":"hope.be?id=11657","global_id_lineage":["hope.be?id=11657"],"author":"5","status":"publish","date":"2019-11-18 16:44:33","date_utc":"2019-11-18 15:44:33","modified":"2020-04-14 15:38:56","modified_utc":"2020-04-14 13:38:56","url":"https:\/\/hope.be\/event\/11657\/","rest_url":"https:\/\/hope.be\/wp-json\/tribe\/events\/v1\/events\/11657","title":"10th European Conference on Rare Diseases &#038; Orphan Products (ECRD)","description":"<p><a href=\"http:\/\/hope.be\/wp-content\/uploads\/2019\/11\/ECRD.png\"><img class=\"alignnone size-full wp-image-11995\" src=\"http:\/\/hope.be\/wp-content\/uploads\/2019\/11\/ECRD.png\" alt=\"\" width=\"1881\" height=\"454\" srcset=\"https:\/\/hope.be\/wp-content\/uploads\/2019\/11\/ECRD.png 1881w, https:\/\/hope.be\/wp-content\/uploads\/2019\/11\/ECRD-300x72.png 300w, https:\/\/hope.be\/wp-content\/uploads\/2019\/11\/ECRD-1024x247.png 1024w, https:\/\/hope.be\/wp-content\/uploads\/2019\/11\/ECRD-768x185.png 768w, https:\/\/hope.be\/wp-content\/uploads\/2019\/11\/ECRD-1536x371.png 1536w\" sizes=\"(max-width: 1881px) 100vw, 1881px\" \/><\/a><\/p>\n<p align=\"justify\"><span style=\"color: #000000;\"><em>In the context of the current COVID-19 pandemic and in line with WHO guidelines, the upcoming <strong>ECRD<\/strong> will <strong><u>take place ONLINE<\/u><\/strong>\u00a0<strong>on 14-15 May (<\/strong><span style=\"color: #3366ff;\"><a style=\"color: #3366ff;\" href=\"http:\/\/download2.eurordis.org.s3.amazonaws.com\/pressreleases\/ECRDstatement_COVID19_Final.pdf\"><strong>Full statement<\/strong><\/a><\/span><strong>)<\/strong>.\u00a0<\/em><\/span><\/p>\n<ul>\n<li><span style=\"color: #3366ff;\"><a style=\"color: #3366ff;\" href=\"https:\/\/www.rare-diseases.eu\/register\/\">Registration IS OPEN<\/a><\/span><span style=\"color: #333333;\">: Until 1 May;<\/span><\/li>\n<li><span style=\"color: #333333;\">FREE pre-conference webinar on the Rare2030 Project: 23 April, 13.00 \u2013 14.00 CEST. Webinar<\/span> <span style=\"color: #3366ff;\"><a style=\"color: #3366ff;\" href=\"https:\/\/zoom.us\/webinar\/register\/WN_1Yz9izVpRbWdodIPGcu7Uw\">Registration is now open<\/a><\/span>.<span style=\"color: #333333;\"> The webinar is free for all conference attendees to hear the latest outcomes of the Rare2030 Foresight Study and understand how the study lays a foundation for policy discussions at the conference.<\/span><\/li>\n<\/ul>\n<p align=\"justify\"><span style=\"color: #333333;\">HOPE joins the organisation of the European Conference on Rare Diseases &amp; Orphan Products (ECRD), which is recognised globally as the largest, patient-led rare disease event.\u00a0<\/span><\/p>\n<p align=\"justify\"><span style=\"color: #333333;\">The rare disease community has made great strides towards improving diagnosis, care and treatment for the 30 million people living with a rare disease in Europe in recent decades, but without vigilance and constant effort, progress can easily be reversed. The ECRD 2020 theme \u201cThe rare disease patient journey in 2030\u201d recognises that the next decade holds great potential for improvement.<\/span><\/p>\n<p align=\"justify\"><span style=\"color: #333333;\">As the EU shapes its future policy and spending frameworks, ECRD 2020 serves as an opportunity to press the \u2018pause button\u2019 and take the time to co-create policy options today that can lead to a better patient journey in 2030 and beyond. Conference participants will hear from world experts on: future trends in diagnosis, rights to access healthcare and medicines, care delivery, digital health and the development, assessment and appraisal of therapies.<\/span><\/p>\n<p align=\"justify\"><span style=\"color: #333333;\">The collaborative dialogue, learning and conversations that will take place during ECRD will form part of the groundwork to shape the national and international rare disease policies of the future. ECRD 2020 will put a spotlight on emerging trends in best practices, promising technologies and cutting-edge thinking across the six conference themes:<\/span><\/p>\n<ul>\n<li><span style=\"color: #333333;\">Theme 1: The future of diagnosis: new hopes, promises and challenges<\/span><\/li>\n<li><span style=\"color: #333333;\">Theme 2: Our values, our rights, our future: shifting paradigms towards inclusion<\/span><\/li>\n<li><span style=\"color: #333333;\">Theme 3: Share, Care, Cure: Transforming care for rare diseases by 2030<\/span><\/li>\n<li><span style=\"color: #333333;\">Theme 4: When therapies meet the needs: enabling a patient-centric approach to therapeutic development<\/span><\/li>\n<li><span style=\"color: #333333;\">Theme 5: Achieving the triple A\u2019s by 2030: Accessible, Available and Affordable Treatments for people living with a rare disease<\/span><\/li>\n<li><span style=\"color: #333333;\">Theme 6: The digital health revolution: hype vs. reality<\/span><\/li>\n<\/ul>\n<h3><span style=\"color: #3366ff;\"><a style=\"color: #3366ff;\" href=\"https:\/\/www.rare-diseases.eu\/programme\/\">Conference Programme<\/a><\/span><\/h3>\n<p><span style=\"color: #333333;\">Read more:\u00a0<\/span><span style=\"color: #3366ff;\"><strong><a style=\"color: #3366ff;\" href=\"https:\/\/www.rare-diseases.eu\/\">https:\/\/www.rare-diseases.eu\/<\/a><\/strong><\/span><\/p>","excerpt":"","slug":"11657","image":{"url":"https:\/\/hope.be\/wp-content\/uploads\/2019\/11\/EIMeG3fXsAAVwb5.jpg","id":11658,"extension":"jpg","width":680,"height":356,"sizes":{"thumbnail":{"width":150,"height":150,"mime-type":"image\/jpeg","url":"https:\/\/hope.be\/wp-content\/uploads\/2019\/11\/EIMeG3fXsAAVwb5-150x150.jpg"},"medium":{"width":300,"height":157,"mime-type":"image\/jpeg","url":"https:\/\/hope.be\/wp-content\/uploads\/2019\/11\/EIMeG3fXsAAVwb5-300x157.jpg"},"timeline-express":{"width":350,"height":120,"mime-type":"image\/jpeg","url":"https:\/\/hope.be\/wp-content\/uploads\/2019\/11\/EIMeG3fXsAAVwb5-350x120.jpg"},"timeline-express-thumbnail":{"width":200,"height":120,"mime-type":"image\/jpeg","url":"https:\/\/hope.be\/wp-content\/uploads\/2019\/11\/EIMeG3fXsAAVwb5-200x120.jpg"},"post-thumbnail-size":{"width":680,"height":330,"mime-type":"image\/jpeg","url":"https:\/\/hope.be\/wp-content\/uploads\/2019\/11\/EIMeG3fXsAAVwb5-680x330.jpg"},"small-grid-size":{"width":400,"height":300,"mime-type":"image\/jpeg","url":"https:\/\/hope.be\/wp-content\/uploads\/2019\/11\/EIMeG3fXsAAVwb5-400x300.jpg"},"portrait":{"width":440,"height":356,"mime-type":"image\/jpeg","url":"https:\/\/hope.be\/wp-content\/uploads\/2019\/11\/EIMeG3fXsAAVwb5-440x356.jpg"},"medium-portfolio":{"width":650,"height":356,"mime-type":"image\/jpeg","url":"https:\/\/hope.be\/wp-content\/uploads\/2019\/11\/EIMeG3fXsAAVwb5-650x356.jpg"}}},"all_day":true,"start_date":"2020-05-14 00:00:00","start_date_details":{"year":"2020","month":"05","day":"14","hour":"00","minutes":"00","seconds":"00"},"end_date":"2020-05-15 23:59:59","end_date_details":{"year":"2020","month":"05","day":"15","hour":"23","minutes":"59","seconds":"59"},"utc_start_date":"2020-05-13 22:00:00","utc_start_date_details":{"year":"2020","month":"05","day":"13","hour":"22","minutes":"00","seconds":"00"},"utc_end_date":"2020-05-15 21:59:59","utc_end_date_details":{"year":"2020","month":"05","day":"15","hour":"21","minutes":"59","seconds":"59"},"timezone":"Europe\/Brussels","timezone_abbr":"CEST","cost":"","cost_details":{"currency_symbol":"","currency_position":"prefix","values":[]},"website":"","show_map":false,"show_map_link":false,"hide_from_listings":false,"sticky":false,"featured":false,"categories":[{"name":"Next event","slug":"next-event","term_group":0,"term_taxonomy_id":259,"taxonomy":"tribe_events_cat","description":"","parent":0,"count":42,"filter":"raw","id":259,"urls":{"self":"https:\/\/hope.be\/wp-json\/tribe\/events\/v1\/categories\/259","collection":"https:\/\/hope.be\/wp-json\/tribe\/events\/v1\/categories"}},{"name":"On the home page","slug":"on-the-home-page","term_group":0,"term_taxonomy_id":260,"taxonomy":"tribe_events_cat","description":"","parent":0,"count":43,"filter":"raw","id":260,"urls":{"self":"https:\/\/hope.be\/wp-json\/tribe\/events\/v1\/categories\/260","collection":"https:\/\/hope.be\/wp-json\/tribe\/events\/v1\/categories"}}],"tags":[],"venue":[],"organizer":[],"json_ld":{"@context":"http:\/\/schema.org","@type":"Event","name":"10th European Conference on Rare Diseases &#038; Orphan Products (ECRD)","description":"&lt;p&gt;In the context of the current COVID-19 pandemic and in line with WHO guidelines, the upcoming ECRD will take place... &lt;\/p&gt;\\n&lt;div class=&quot;clear&quot;&gt;&lt;\/div&gt;\\n&lt;p&gt;&lt;a href=&quot;https:\/\/hope.be\/event\/11657\/&quot; class=&quot;excerpt-read-more&quot;&gt;Read More&lt;\/a&gt;&lt;\/p&gt;\\n","image":"https:\/\/hope.be\/wp-content\/uploads\/2019\/11\/EIMeG3fXsAAVwb5.jpg","url":"https:\/\/hope.be\/event\/11657\/","startDate":"2020-05-14T00:00:00+02:00","endDate":"2020-05-15T23:59:59+02:00","performer":"Organization"}}